Journal publications

Collier A, Balmer D, Gilder E, Parke R. Patient safety and hospital visiting at the end of life during COVID-19 restrictions in Aotearoa New Zealand: a qualitative study. BMJ Qual Saf. 2023 Dec;32(12):704-711. doi: 10.1136/bmjqs-2022-015471. Epub 2023 Feb 14.

Rawlings D, Tieman J, Miller-Lewis L. ‘I’m very interested in learning more’: What health care professionals in the Dying2Learn Massive Open Online Course think of the death doula role. Progress in Palliative Care. 2023 Nov 26. doi: 10.1080/09699260.2023.2281113

Mills J, Haberecht J. Expanding horizons of hospice and palliative care across the Asia-Pacific. Progress in Palliative Care. 2023 Nov 24. doi: 10.1080/09699260.2024.2286057.

Smith SE, Chowdhury MK, Doherty M, Morgan DD. Serious health-related suffering experienced by children with disability and their families living in Bangladesh: A scoping review. Palliat Med. 2023 Apr;37(4):602-626. doi: 10.1177/02692163221136896. Epub 2022 Nov 25.

Damarell RA, Morgan DD, Tieman JJ, Senior T. Managing multimorbidity: a qualitative study of the Australian general practitioner experience. Fam Pract. 2023 Mar 28;40(2):360-368. doi: 10.1093/fampra/cmac096.

Walker R, Belperio I, Devery K, Morgan DD, Rawlings D, Raghavendra P. End-of-life care for adults with long-standing physical disability from the perspectives of bereaved family members: a qualitative exploratory study. Disability & Society. 2023 Nov 17. doi: 10.1080/09687599.2023.2279480.

Rawlings D, Van Dinther K, Miller-Lewis L, Tieman J, Swetenham K. Experiences of engaging a death doula: qualitative interviews with bereaved family members. Palliat Care Soc Pract. 2023 Nov 8;17:26323524231207112. doi: 10.1177/26323524231207112.

Parker D, Reymond L, Cooper K, Tieman J, Ivynian S. An evaluation of an online education programme to improve nurses' ability to support carers to use subcutaneous medicines. Int J Palliat Nurs. 2023 Nov 2;29(11):538-546. doi: 10.12968/ijpn.2023.29.11.538.

Phelan C, Hammond L, Thorpe C, Allcroft P, O'Loughlin M. A Novel Approach to Managing Thirst and Dry Mouth in Palliative Care: A Prospective Randomized Cross-Over Trial. J Pain Symptom Manage. 2023 Nov;66(5):587-594.e2. doi: 10.1016/j.jpainsymman.2023.08.005. Epub 2023 Aug 9.

Rawlings D, Damarell R, Tait P, Chakraborty A, Dalli A, Devery K, Tieman J. Emerging health and social policy considerations for safe and quality end-of-life care in Australia - the evidence, gaps and challenges. Aust Health Rev. 2023 Oct;47(5):586-588. doi: 10.1071/AH23166.

Wæhrens EE, Morgan DD, la Cour K, Lyons KD, Lozano ML, De Carlo MMP, Rezende G, Pilegaard MS. International consensus on occupational therapy interventions for people with palliative care needs: A European Association for Palliative Care Group Concept Mapping study. Palliat Med. 2023 Oct;37(9):1389-1401. doi: 10.1177/02692163231188155. Epub 2023 Aug 3.

Marston C, Morgan DD, Philip J, Agar MR. Experience and acceptability of a carer-focussed intervention in acute oncology settings: A qualitative study of people with advanced cancer and their carers. Aust Occup Ther J. 2023 Oct;70(5):570-580. doi: 10.1111/1440-1630.12887. Epub 2023 Jun 4.

Collier A, Chapman M. Matters of care and the good death - rhetoric or reality? Curr Opin Support Palliat Care. 2023 Sep 1;17(3):208-213. doi: 10.1097/SPC.0000000000000663. Epub 2023 Jul 4.

Brose JM, Willis E, Morgan DD. The intentional pursuit of everyday life while dying: A longitudinal qualitative study of working-aged adults living with advanced cancer. Palliat Med. 2023 Sep;37(8):1210-1221. doi: 10.1177/02692163231180911. Epub 2023 Jun 13.

Mills N, Chapman M, Sutherland I, Gillam L, Collins A. Parental perspectives on the clinician's approach to serious illness communication: A qualitative study. Palliat Support Care. 2023 Aug 1:1-6. doi: 10.1017/S1478951523001153. Epub ahead of print.

Tieman J, Morgan D, Jones K, Gordon S, Chakraborty A. Allied health professionals' contribution to care at end of life in aged care settings. Aust J Prim Health. 2023 Aug;29(4):341-348. doi: 10.1071/PY22178.

Dadich A, Hodgins M, Womsley K, Collier A. 'When a patient chooses to die at home, that's what they want… comfort, home': Brilliance in community-based palliative care nursing. Health Expect. 2023 Aug;26(4):1716-1725. doi: 10.1111/hex.13780. Epub 2023 Jun 9.

Tieman J, Hudson P, Thomas K, Saward D, Parker D. Who cares for the carers? carerhelp: development and evaluation of an online resource to support the wellbeing of those caring for family members at the end of their life. BMC Palliat Care. 2023 Jul 20;22(1):98. doi: 10.1186/s12904-023-01225-1.

Dadich A, Rodrigues J, De Bellis A, Hosie A, Symonds T, Prendergast J, Bevan A, Collier A. Patient safety for people experiencing advanced dementia in hospital: A video reflexive ethnography. Dementia (London). 2023 Jul;22(5):1057-1076. doi: 10.1177/14713012231168958. Epub 2023 Apr 9.

Hammond L, Chakraborty A, Thorpe C, O'Loughlin M, Allcroft P, Phelan C. Relieving Perception of Thirst and Xerostomia in Patients with Palliative and End-of-life Care Needs: A Rapid Review. J Pain Symptom Manage. 2023 Jul;66(1):e45-e68. doi: 10.1016/j.jpainsymman.2023.02.315. Epub 2023 Feb 23.

Rawlings D, Miller-Lewis L, Tieman J, Swetenham K. Death doula working practices and models of care: the views of death doula training organisations. BMC Palliat Care. 2023 Jun 23;22(1):78. doi: 10.1186/s12904-023-01200-w.

Collier A, Dadich A, Jeffs C, Noble A, Crawford GB. 'The palliative care ambulance': A qualitative study of patient and caregiver perspectives of an ambulance service. Palliat Med. 2023 Jun;37(6):875-883. doi: 10.1177/02692163231166760. Epub 2023 Apr 24.

Adams A, Miller-Lewis L, Tieman J. Learning Designers as Expert Evaluators of Usability: Understanding Their Potential Contribution to Improving the Universality of Interface Design for Health Resources. Int J Environ Res Public Health. 2023 Mar 5;20(5):4608. doi: 10.3390/ijerph20054608.

Rawlings D, Winsall M, Miller-Lewi L, & Tieman J. Natural Death Versus Known Date-Of-Death: A Qualitative Study of Views on Voluntary Assisted Dying in an Online Course About Death. Omega (Westport) 2023 Mar;86(4):1272-1290. doi: 10.1177/00302228211008771. Epub 2021 Apr 11.

Marston C, Morgan DD, Philip J, Agar M. Supporting Carers as Patients Move between Hospital and Home: A Systematic Review of Interventions to Support These Transitions in Care. J Palliat Med. 2023 Feb;26(2):270-298. doi: 10.1089/jpm.2022.0221. Epub 2022 Oct 13.

Belperio I, Devery K, Morgan DD, Rawlings D, Raghavendra P, Walker R. Health and disability care providers' experiences and perspectives on end-of-life care needs of individuals with long-standing physical disability: A qualitative interview study. Palliat Med. 2023 Jan;37(1):131-139. doi: 10.1177/02692163221128702. Epub 2022 Oct 20.

Devery K, Winsall M, Rawlings D. A qualitative study exploring challenges and solutions to negotiating goals of care at the end of life in hospital settings. Int J Qual Health Care. 2022 Nov 23;34(4):mzac089. doi:10.1093/intqhc/mzac089

Rawlings D, Miller-Lewis L, Tieman J, Swetenham K. An international survey of Death Doula training organizations: the views of those driving Death Doula training and role enactment. Palliat Care Soc Pract. 2022 Sep 12;16:26323524221123344. doi: 10.1177/26323524221123344.

van Gaans D, Erny-Albrecht K, Tieman J. Palliative Care Within the Primary Health Care Setting in Australia: A Scoping Review. Public Health Rev. 2022 Sep 6;43:1604856. doi: 10.3389/phrs.2022.1604856.

Devery K, Yin H, Rawlings K. End-of-Life Essentials education modules: a quality and safety initiative to improve health professionals end-of-life care knowledge, skills, attitude and confidence. BMJ Open Quality. 2022 Sep;11:e001925. doi: 10.1136/bmjoq-2022-001925

Boschen K, Phelan C, Lawn S. NDIS Participants with Psychosocial Disabilities and Life-Limiting Diagnoses: A Scoping Review. Int. J. Environ. Res. Public Health. 2022 Aug 16,19(16):10144. https://doi.org/10.3390/ijerph191610144.

Rowley G, Tieman J, Jones K. Steps towards equitable care: creating web pages to highlight diversity for Australia’s aged care and end of life care workforce. Aust J Prim Health. 2022 Aug;28(4):338-343. doi: 10.1071/PY21084.

Jessop S, Phelan C. Health-care workers' understanding of and barriers to palliative care services to Aboriginal children with cancer. J Paediatr Child Health. 2022 Aug;58(8):1390-1395. doi: 10.1111/jpc.16000. Epub 2022 Apr 30. 

Pilegaard MS, la Cour K, Baldursdóttir F, Morgan D, Oestergaard LG, Brandt Å. Assistive devices among people living at home with advanced cancer: Use, non-use and who have unmet needs for assistive devices? Eur J Cancer Care (Engl). 2022 Jul;31(4):e13572. doi: 10.1111/ecc.13572. Epub 2022 Mar 14. 

Javanparast S, Anaf J, Tieman J. Equity consideration in palliative care policies, programs, and evaluation: an analysis of selected federal and South Australian documents. BMC Palliat Care. 2022 Jun 16;21(1):109. doi: 10.1186/s12904-022-00997-2. 

Marco DJ, Thomas K, Ivynian S, Wilding H, Parker D, Tieman J, Hudson P. Family carer needs in advanced disease: systematic review of reviews. BMJ Support Palliat Care. 2022 Jun;12(2):132-141. doi: 10.1136/bmjspcare-2021-003299. Epub 2022 Jan 7.

Morgan DD, Taylor RR, Ivy M, George S, Farrow C, Lee V. Contemporary occupational priorities at the end of life mapped against Model of Human Occupation constructs: A scoping review. Aust Occup Ther J. 2022 Jun;69(3):341-373. doi: 10.1111/1440-1630.12792. Epub 2022 Feb 23.

Morgan DD, Willis E, Sweet K, Roe P, Rabaçal J, Currow DC. The Complexities of Prescribing Assistive Equipment at the End of Life-Patient and Caregivers' Perspectives. Healthcare (Basel). 2022 May 29;10(6):1005.

Kochovska S, Currow D, Chang S, Johnson M, Ferreira D, Morgan D, Olsson M, Ekström M. Persisting breathlessness and activities reduced or ceased: a population study in older men. BMJ Open Respir Res. 2022 May;9(1):e001168. doi: 10.1136/bmjresp-2021-001168.

Devery K, Winsall M, Rawlings D. Teams and continuity of end-of-life care in hospitals: managing differences of opinion. BMJ Open Qual. 2022 Apr;11(2):e001724. doi: 10.1136/bmjoq-2021-001724.

Nagarajan SV, Lewis V, Halcomb E, Rhee J, Morton RL, Mitchell GK, Tieman J, Phillips JL, Detering K, Gavin J, Clayton JM. Barriers and facilitators to nurse-led advance care planning and palliative care practice change in primary healthcare: a qualitative study. Aust J Prim Health. 2022 Apr;28(2):151-157. doi: 10.1071/PY21081.

Vilapakkam Nagarajan S, Lewis V, Halcomb EJ, Rhee J, Tieman J, Clayton JM. Australian general practice experiences of implementing a structured approach to initiating advance care planning and palliative care: a qualitative study. BMJ Open. 2022 Mar 28;12(3):e057184. doi: 10.1136/bmjopen-2021-057184.

Clark J, Chang S, Kinchin I, Ferreira D, Kochovska S, Morgan D, Poulos LM, Johnson MJ, Ekström M, Currow DC. Lower workforce participation is associated with more severe persisting breathlessness. BMC Pulm Med. 2022 Mar 18;22(1):93. doi: 10.1186/s12890-022-01861-y. 

Cheyne S, Lindley RI, Smallwood N, Tendal B, Chapman M, Fraile Navarro D, Good PD, Jenkin P, McDonald S, Morgan D, Murano M, Millard T, Naganathan V, Srikanth V, Tuffin P, Vogel J, White H, Chakraborty SP, Whiting E, William L, Yates PM, Callary M, Elliott J, Agar MR; National COVID-19 Clinical Evidence Taskforce. Care of older people and people requiring palliative care with COVID-19: guidance from the Australian National COVID-19 Clinical Evidence Taskforce. Med J Aust. 2022 Mar 7;216(4):203-208. doi: 10.5694/mja2.51353. Epub 2021 Dec 5.

Rawlings D, Miller-Lewis L, Tieman J. ‘It’s like a wedding planner’: Dying2Learn Massive Open Online Course participants views of the Death Doula role. Progress in Palliative Care. 2022 Jan 20;30(5):281-287. DOI: 10.1080/09699260.2021.2021371

Rawlings D, Winsall M, Yin H, Devery K. What is a compassionate response in the emergency department? Learner evaluation of an End-of-Life Essentials online education module. Emerg Med Australas. 2021 Dec;33(6):983-991. doi: 10.1111/1742-6723.13776. Epub 2021 May 5.

Barnes-Harris M, Allingham S, Morgan D, Ferreira D, Johnson MJ, Eagar K, Currow D. Comparing functional decline and distress from symptoms in people with thoracic life-limiting illnesses: Lung cancers and non-malignant end-stage respiratory diseases. Thorax 2021 Oct;76(10):989-995. doi: 10.1136/thoraxjnl-2020-216039. Epub 2021 Feb 16.

Mills J, Fox J, Damarell R, Tieman J, Yates P. Palliative care providers' use of digital health and perspectives on technological innovation: a national study. BMC Palliat Care. 2021 Aug 7;20(1):124. doi: 10.1186/s12904-021-00822-2.

Dolgoy N, Driga A, Brose JM. The Essential Role of Occupational Therapy to Address Functional Needs of Individuals Living with Advanced Chronic Cancers. Semin Oncol Nurs. 2021 Aug;37(4):151172. doi: 10.1016/j.soncn.2021.151172. Epub 2021 Jul 16.

Morgan DD, Marston C, Barnard E, Farrow C. Conserving dignity and facilitating adaptation to dependency with intimate hygiene for people with advanced disease: A qualitative study. Palliat Med. 2021 Jul;35(7):1366-1377. doi: 10.1177/02692163211017388. Epub 2021 May 28.

Tieman J, Lewis V. Benefits of Structured Engagement with Target Audiences of a Health Website: Study Design for a Multi-Case Study. Healthcare (Basel). 2021 May 18;9(5):600. doi: 10.3390/healthcare9050600.

Rawlings D, Davies G, Tieman J. Compassionate communities - What does this mean for roles such as a death doula in end-of-life care? Public Health. 2021 May;194:167-169. doi: 10.1016/j.puhe.2021.02.038. Epub 2021 May 1.

Tait P, Chakraborty A, Jones K, Tieman J. What Is the Community Pharmacists' Role in Supporting Older Australians with Palliative Care Needs? Healthcare (Basel). 2021 Apr 21;9(5):489. doi: 10.3390/healthcare9050489.

Morgan DD, Litster C, Winsall M, Devery K, Rawlings D. "It's given me confidence": a pragmatic qualitative evaluation exploring the perceived benefits of online end-of-life education on clinical care. BMC Palliat Care. 2021 Apr 13;20(1):57. doi: 10.1186/s12904-021-00753-y.

Koczwara B, Meng R, Miller MD, Clark RA, Kaambwa B, Marin T, Damarell RA, Roder DM. Late mortality in people with cancer: a population-based Australian study. Med J Aust 2021 Apr;214(7):318-323. doi: 10.5694/mja2.50879. Epub 2020 Dec 9.

Keenan AJ, Tsourtos G, Tieman J. The Value of Applying Ethical Principles in Telehealth Practices: Systematic Review. J Med Internet Res. 2021 Mar 30;23(3):e25698. doi: 10.2196/25698.

Rawlings D, Litster C, Miller-Lewis L, Tieman J, Swetenham K. End-of-life doulas: A qualitative analysis of interviews with Australian and International death doulas on their role. Health Soc Care Community. 2021 Mar;29(2):574-587. doi: 10.1111/hsc.13120. Epub 2020 Aug 3.

Kochovska S, Agar MR, Phillips JL, Tieman J, Sheehan C, Clark K, Currow DC. Applying evidence-based symptomatic treatments from other clinical disciplines to palliative care. Palliat Med. 2021 Mar;35(3):458-460. doi: 10.1177/0269216321996984. Epub 2021 Feb 27.

Philip J, Collins A, Phillips J, Luckett T, Morgan DD, Lobb EA, DiGiacomo M, Kochovska S, Brown L, Currow DC. The Development of the Australian National Palliative Care Clinical Studies Collaborative "Integrating Qualitative Research into Clinical Trials Framework". J Palliat Med. 2021 Mar;24(3):331-337. doi: 10.1089/jpm.2020.0480. Epub 2020 Oct 20.

Miller-Lewis LR, Lewis TW, Tieman J, Rawlings D, Parker D, Sanderson CR. Words describing feelings about death: A comparison of sentiment for self and others and changes over time. PLoS One. 2021 Jan 6;16(1):e0242848. doi: 10.1371/journal.pone.0242848.

Damarell RA, Morgan DD, Tieman JJ, Healey DF. Multimorbidity through the lens of life-limiting illness: how helpful are Australian clinical practice guidelines to its management in primary care? Aust J Prim Health. 2021 Jan;27:122-129. doi: 10.1071/PY20164.

Vandersman P, Perimal-Lewis L, Tieman J. Is There an App for That? A Scoping Review of Apps for Care Workers in the Aged Care Sector. In Maeder AJ, Higa C, van den Berg MEL, Gough C, editors, Telehealth Innovations in Remote Healthcare Services Delivery - Global Telehealth 2020: Global Telehealth 2020. Amsterdam: IOS Press. 2021. p. 124-134. (Studies in Health Technology and Informatics). doi: 10.3233/SHTI210035

Taylor A, Tieman J, Maeder A. Digital Innovations for Aged Care: Impacts in the COVID-19 Pandemic. In Merolli M, Bain C, Schaper LK, editors, Healthier Lives, Digitally Enabled - Selected Papers from the Digital Health Institute Summit 2020: Selected Papers from the Digital Health Institute Summit 2020 . Vol. 276. IOS Press. 2021. p. 51-57. (Studies in Health Technology and Informatics). doi: 10.3233/SHTI210010.

To THM, Currow DC, Swetenham K, Morgan DD, Tieman J. How Can Activity Monitors Be Used in Palliative Care Patients? J Palliat Med. 2019 Jul;22(7):830-832. doi: 10.1089/jpm.2018.0414. Epub 2019 Mar 19.

Tait P, Gravier S, Erny-Albrecht K, Tieman J. Symptom Management in the Terminal Phase: Turning Challenges into Opportunities. Australasian Journal on Ageing. 2019 May;38(S1):61-62. P58. doi: 10.1111/ajag.12661